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Diagram showing why cancer cells need their own blood supply, the first CRUK released image. See the Commons category for more as time goes by; now over 400.
"When cells cause cancer by giving the wrong messages" - we've finally cracked the file format conversion to start uploading some of our animations!
One of Cancer Research UK's annual "Race for Life" events, here at Cheltenham in 2011

John Byrne (normally User:Johnbod) is Wikimedian/Wikipedian in residence at Cancer Research UK in London from May to early December 2014, four days per week, using the alternate account User:Wiki CRUK John for edits made in this role (my editing stats (some also on my main account)).

The only photo Commons used to have for Cancer Research UK's London Research Institute

Objectives

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See CRUK's Henry Scowcoft's interview with Medscape.com in September 2014]

From John's WMUK/WMF blogpost (see section below): "Part of the role at CRUK will be to work with the existing medical editors on the English Wikipedia to improve our articles on cancer topics, in particular those on the four common cancers which are widely recognised as having the greatest "unmet need" due to little improvement in survival rates in recent decades. These are cancers of the lung, pancreas, brain and oesophagus. CRUK has just announced a new research strategy with an increased focus on these types of cancers, and my role will complement that. I will also be addressing other cancer-related content, for example in relation to the Medical Translation Project of WikiProject Medicine.

CRUK has access, through its own staff and its access to other researchers and clinicians, to tremendous amounts of expertise, both in terms of science and the communication of science, where they have teams trained and experienced in communicating with a wide range of distinct audiences, from those who write their patient information pages in very plain English to the different teams who produce material for scientists and for general audiences. My boss, Henry Scowcroft, writes for CRUK’s award-winning science blog, and is a Wikipedian. I’ll be exploring a number of approaches in hopes of bringing all this expertise to bear on Wikipedia’s content.

Wikimania 2014 in London, about a mile from CRUK’s HQ, is a great opportunity to bring CRUK and many medical Wikipedians together face to face. A novel aspect of the role is that we are planning to conduct research into the experiences on a range of different types of consumers of Wikipedia’s cancer content. There has been very little formal qualitative research into the experiences of Wikipedia’s readers – we hope this project will begin to address this gap, as well as encourage others to carry out similar projects.

I will also be making presentations and conducting training for key groups of CRUK staff and researchers at their five main research centers in London, Manchester, Glasgow, Oxford and Cambridge. Some of this will be traditional how-to-edit training, but I will also be doing some workshops aimed at people who want to contribute reviews and comments, but who don’t expect to do much editing themselves.

On another tack, I will be working on releasing suitable CRUK images on open licenses and uploading them onto Wikimedia Commons. I think the medical diagrams CRUK has created will be especially useful in Wikipedia articles. We’re already making substantial progress towards a substantial release of content."

Top cancer-related translation targets, from the Popular pages WikiProject Medicine Translation task force list: Cancer, Leukemia , Colorectal cancer, Lung cancer, Breast cancer, Prostate cancer, Stomach cancer, Skin cancer, Health effects of tobacco.

Based on the funding application to the Wellcome Trust, who are funding the project, Wikimedia UK has created a list of the objectives for this project from their point of view. It refers to their strategy structure, which you can see at wmuk:Strategic goals.

CRUK article reviews

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These are initial reviews by the internal people who recently reviewed and revised the CRUK (cancerhelp section) pages on this, with the most useful recent papers, which I have working copies of. The idea is to sort these points out in the article before sending the article for review by other outside specialists.

Pancreatic cancer has now had a review by an outside clinical expert, has completed a Wikipedia peer review, and is going through a Featured Article nomination

CRUK images released on open licenses

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Wikimedia Commons has media related to Images from Cancer Research UK.
Diagram showing the T stages of bladder cancer

We now have over 400 body diagrams up - not all cancer-specific. More images to follow as the project continues. This is a list of the latest upload. Many thanks to User:Fae for uploading the first main batch. Please help to categorize and use them!

The BaGLAMa2 report shows page views of articles using these images in August, traditionally a low-traffic month, totalled 1.1 million. Subsequent months showed: September, 1.41 million, October 1.43 million, November 1.35 million (cumulative 6.61 million to November). These figures exclude views on mobile & other hand-held devices, which will represent about 30% of total traffic.

Example of an image used (and properly attributed) by the Society for General Microbiology in their blog.

Cancer Statistics

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CRUK maintains CancerStats a large web sub-site devoted to cancer statistics, mostly UK but also global. A number of CRUK specialists from the stats team added basic UK stats to several cancer articles on October 3rd - e.g. this, with this note/disclosure on the talk page: "Hi, I'm from Cancer Research UK and going to add some UK stats to the epidemiology section complied from ONS, ISD Scotland, Welsh Cancer Intelligence and Surveillance Unit and the Northern Ireland Cancer Registry as summarised on the Cancer Research UK website". They now plan to do the rest of the 35 cancer types they cover in the same way. What is great is that they are keen to incorporate this into their standard updating procedures.

See: these contributions in particular

Editors involved

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Inside CRUK

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Email Wikipedia[at]cancer.org.uk - the long-term contact email for CRUK. For now, goes to me as Wikpedian in Residence, and User:HenryScow. Wiki CRUK John (talk) 16:21, 21 July 2014 (UTC)[reply]

For other CRUK employees and researchers who have received editing training in 2014 see the training section below, and sub-pages.
For the 2011 training, see User:HenryScow/CRUK Editors


Outside CRUK

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Meeting up at Wikimania 2014

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As part of the pre-conference events, we had a very successful meeting at CRUK, see the event page on the Wikimania site (and planning on meta:Wiki Project Med/Wikimania 2014 meetup), with editors from 5 continents, and several CRUK staff from various departments. Many thanks to all who came! One result can be seen at Wikipedia_talk:Manual_of_Style/Medicine-related_articles#A_change_to_some_of_our_headings, where improvements to some WP:MEDMOS headings that were discussed are being opened to the WP medical community.

Reports

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Interim reports:

Newsletters

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Mainly written for CRUK non- or new Wikipedians.

More images

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  • Diagram showing nasal cavity cancer that has spread to the lungs
    Diagram showing nasal cavity cancer that has spread to the lungs
  • Diagram showing where melanoma is most likely to develop
    Diagram showing where melanoma is most likely to develop
  • Diagram showing stage T3 cancer of the nasal cavity
    Diagram showing stage T3 cancer of the nasal cavity
  • Diagram showing why cancer cells need their own blood supply
    Diagram showing why cancer cells need their own blood supply
  • Diagram showing the possible scar lines after surgery for oesophageal cancer
    Diagram showing the possible scar lines after surgery for oesophageal cancer

Media mentions

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My blogs etc.

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Other media

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Wikimania 2014

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  • video of: "Wikipedia and Medicine", Speaker: James Heilman (09:10 to 45:00 on file)
  • "What does a Wikipedian in Residence in the scientific sector do?", John Byrne & Henry Scowcroft of Cancer Research UK, Sydney Poore, Wikipedian in Residence at Cochrane Collaboration. Video on You Tube, starts at 1:10:30
  • "Medical information online; Wikipedia's place in the ecosystem", panel: James Heilman (Jmh649]/Doc James) MD, CCFP-EM, Clinical Faculty member of the Department of Emergency Medicine, Faculty of Medicine, University of British Columbia (Clinical Instructor), Henry Potts, Senior Lecturer, Centre for Health Informatics and Multiprofessional Education (CHIME), UCL Institute of Epidemiology & Health Care (Bondesgesou), Henry Scowcroft (HenryScow) Cancer Research UK's news and multimedia manager, and John Byrne (Johnbod), now the Cancer Research UK Wikipedian-in-Residence (as Wiki CRUK John). Video here, starts 1:03:20)

2011 project

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See here. Training was received courtesy of Wikimedia UK for a number of CRUK staff, mostly those who write CRUK material for their websites and other outputs. User:HenryScow is now managing the Wikipedian-in-residence.

Training

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Medical

Research into Wikipedia and medicine

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AC list
  1. Taylor-Mendes C (2007). "Proceed with caution: using Wikipedia as a reference". Neonatal Netw. 26 (3): 140–1. PMID 17521060.
  2. Mühlhauser I, Oser F (2008). "[Does WIKIPEDIA provide evidence-based health care information? A content analysis]". Z Evid Fortbild Qual Gesundhwes (in German). 102 (7): 441–8. doi:10.1016/j.zefq.2008.06.019. PMID 19209572.
  3. Johnson PT, Chen JK, Eng J, Makary MA, Fishman EK (September 2008). "A comparison of world wide web resources for identifying medical information". Acad Radiol. 15 (9): 1165–72. doi:10.1016/j.acra.2008.02.010. PMID 18692758.
  4. Lacovara JE (June 2008). "When searching for the evidence, stop using Wikipedia!". Medsurg Nurs. 17 (3): 153. PMID 18686418.
  5. Williams N, Mughal S, Blair M (December 2008). "'Is my child developing normally?': a critical review of web-based resources for parents". Dev Med Child Neurol. 50 (12): 893–7. doi:10.1111/j.1469-8749.2008.03148.x. PMID 19160461. S2CID 25367933.
  6. Clauson KA, Polen HH, Boulos MN, Dzenowagis JH (2008). "Accuracy and completeness of drug information in Wikipedia". AMIA Annu Symp Proc: 912. PMID 18998977.
  7. Clauson KA, Polen HH, Boulos MN, Dzenowagis JH (December 2008). "Scope, completeness, and accuracy of drug information in Wikipedia". Ann Pharmacother. 42 (12): 1814–21. doi:10.1345/aph.1L474. PMID 19017825. S2CID 2072846.
  8. Stillman-Lowe C (November 2008). "Wikipedia comes second". Br Dent J. 205 (10): 525. doi:10.1038/sj.bdj.2008.994. PMID 19023293.
  9. Pender MP, Lasserre K, Kruesi L, Del Mar C, Anuradha S (2008). "Putting Wikipedia to the Test: A Case Study". Conference Abstract.
  10. Wolff A (2009). "[Letter on the article "Is medical and health information available from Wikipedia on the Internet evidence based?--a content analysis" published online 2008.06.09]". Z Evid Fortbild Qual Gesundhwes (in German). 103 (1): 34. PMID 19374286.
  11. Fiore F (2009). "[Medications in Wikipedia. Comparison of reliability]". Perspect Infirm (in French). 6 (5): 11. PMID 20120299.
  12. Pender MP, Lasserre KE, Del Mar C, Kruesi L, Anuradha S (December 2009). "Is Wikipedia unsuitable as a clinical information resource for medical students?". Med Teach. 31 (12): 1095–6. PMID 20050104.
  13. Laurent MR, Vickers TJ (2009). "Seeking health information online: does Wikipedia matter?". J Am Med Inform Assoc. 16 (4): 471–9. doi:10.1197/jamia.M3059. PMC 2705249. PMID 19390105.
  14. Kitchen R (March 2009). "Not an authority (Comment on: Wikipedia use)". Br Dent J. 206 (5): 241. doi:10.1038/sj.bdj.2009.180. PMID 19287406. S2CID 19958754.
  15. Shawkat E (February 2009). "Wikipedia use (Comment on: Wikipedia comes second)". Br Dent J. 206 (3): 117. doi:10.1038/sj.bdj.2009.68. PMID 19218928. S2CID 43803925.
  16. Wolff A (2009). "[Letter on the article "Is medical and health information available from Wikipedia on the Internet evidence based?--a content analysis" published online 2008.06.09]". Z Evid Fortbild Qual Gesundhwes (in German). 103 (1): 34. PMID 19374286.
  17. Younger P (2010). "Using wikis as an online health information resource". Nurs Stand. 24 (36): 49–56, quiz 58. doi:10.7748/ns2010.05.24.36.49.c7772. PMID 20527486.
  18. Friedlin J, McDonald CJ (2010). "An evaluation of medical knowledge contained in Wikipedia and its use in the LOINC database". J Am Med Inform Assoc. 17 (3): 283–7. doi:10.1136/jamia.2009.001180. PMC 2974620. PMID 20442145.
  19. Wood A, Struthers K (2010). "Pathology education, Wikipedia and the Net generation". Med Teach. 32 (7): 618. doi:10.3109/0142159X.2010.497719. PMID 20653388. S2CID 218876419.
  20. Leithner A, Maurer-Ertl W, Glehr M, Friesenbichler J, Leithner K, Windhager R (2010). "Wikipedia and osteosarcoma: a trustworthy patients' information?". J Am Med Inform Assoc. 17 (4): 373–4. doi:10.1136/jamia.2010.004507. PMC 2995655. PMID 20595302.
  21. Rajagopalan MS, Khanna VK, Leiter Y, et al. (September 2011). "Patient-oriented cancer information on the internet: a comparison of wikipedia and a professionally maintained database". J Oncol Pract. 7 (5): 319–23. doi:10.1200/JOP.2010.000209. PMC 3170066. PMID 22211130.
  22. Metcalfe D, Powell J (December 2011). "Should doctors spurn Wikipedia?". J R Soc Med. 104 (12): 488–9. doi:10.1258/jrsm.2011.110227. PMID 22179287. S2CID 20876488.
  23. Haigh CA (February 2011). "Wikipedia as an evidence source for nursing and healthcare students". Nurse Educ Today. 31 (2): 135–9. doi:10.1016/j.nedt.2010.05.004. PMID 20646799.
  24. Lavsa, Stacey M.; Corman, Shelby L.; Culley, Colleen M.; Pummer, Tara L. (2011). "Reliability of Wikipedia as a medication information source for pharmacy students". Currents in Pharmacy Teaching and Learning. 3 (2): 154–8. doi:10.1016/j.cptl.2011.01.007.
  25. Haigh CA (February 2011). "Wikipedia as an evidence source for nursing and healthcare students". Nurse Educ Today. 31 (2): 135–9. doi:10.1016/j.nedt.2010.05.004. PMID 20646799.
  26. Kupferberg N, Protus BM (October 2011). "Accuracy and completeness of drug information in Wikipedia: an assessment". J Med Libr Assoc. 99 (4): 310–3. doi:10.3163/1536-5050.99.4.010. PMC 3193353. PMID 22022226.
  27. Rajagopalan MS, Khanna VK, Leiter Y, et al. (September 2011). "Patient-oriented cancer information on the internet: a comparison of wikipedia and a professionally maintained database". J Oncol Pract. 7 (5): 319–23. doi:10.1200/JOP.2010.000209. PMC 3170066. PMID 22211130.
  28. Ozdoba C (September 2011). "Wikipedia: A good address for neuroradiologists?". Clin Neuroradiol. 21 (3): 181–2. doi:10.1007/s00062-011-0098-x. PMID 21853303. S2CID 8966428.
  29. Reavley NJ, Mackinnon AJ, Morgan AJ, et al. (August 2012). "Quality of information sources about mental disorders: a comparison of Wikipedia with centrally controlled web and printed sources". Psychol Med. 42 (8): 1753–62. doi:10.1017/S003329171100287X. hdl:11343/59260. PMID 22166182. S2CID 13329595.
  30. Wicks P, Bell V (April 2012). "Letter to the editor: quality of mental health information on Wikipedia". Psychol Med. 42 (4): 891. doi:10.1017/S0033291712000086. PMID 22313634. S2CID 33334520.
  31. Natarajan A, Racherla S (May 2012). "Wikipedia: encyclopaedia cardiologica". J R Soc Med. 105 (5): 191. doi:10.1258/jrsm.2012.120012. PMID 22637767.
  32. Aldairy T, Laverick S, McIntyre GT (August 2012). "Orthognathic surgery: is patient information on the Internet valid?". Eur J Orthod. 34 (4): 466–9. doi:10.1093/ejo/cjr046. PMID 21459834.
  33. Pusz MD, Brietzke SE (September 2012). "How good is Google? The quality of otolaryngology information on the internet". Otolaryngol Head Neck Surg. 147 (3): 462–5. doi:10.1177/0194599812447733. PMID 22597577. S2CID 8542051.
  34. Volsky PG, Baldassari CM, Mushti S, Derkay CS (September 2012). "Quality of Internet information in pediatric otolaryngology: a comparison of three most referenced websites". Int. J. Pediatr. Otorhinolaryngol. 76 (9): 1312–6. doi:10.1016/j.ijporl.2012.05.026. PMID 22770592.
  35. Thomas GR, Eng L, de Wolff JF, Grover SC (2013). "An evaluation of Wikipedia as a resource for patient education in nephrology". Semin Dial. 26 (2): 159–63. doi:10.1111/sdi.12059. PMID 23432369. S2CID 23361618.
  36. Edwards KL, Salvo MC, Ward KE, et al. (February 2014). "Assessment and revision of clinical pharmacy practice internet web sites". Ann Pharmacother. 48 (2): 258–67. doi:10.1177/1060028013510899. PMID 24259640. S2CID 2660272.
  37. Archambault PM, van de Belt TH, Grajales FJ, et al. (2013). "Wikis and collaborative writing applications in health care: a scoping review". J. Med. Internet Res. 15 (10): e210. doi:10.2196/jmir.2787. PMC 3929050. PMID 24103318.
  38. Archambault PM, van de Belt TH, Grajales Iii FJ, et al. (2012). "Wikis and collaborative writing applications in health care: a scoping review protocol". JMIR Res Protoc. 1 (1): e1. doi:10.2196/resprot.1993. PMC 3626140. PMID 23612481.
  39. Dunne SS, Cummins NM, Hannigan A, Shannon B, Dunne C, Cullen W (2013). "Generic medicines: an evaluation of the accuracy and accessibility of information available on the Internet". BMC Med Inform Decis Mak. 13: 115. doi:10.1186/1472-6947-13-115. PMC 3851567. PMID 24099099.
  40. Schmidt T (2013). "Informal education of medical doctors on the Internet". Stud Health Technol Inform. 190: 92–4. PMID 23823386.
  41. Burgos C, Bot A, Ring D (June 2012). "Evaluating the effectiveness of a wiki internet site for medical topics". J Hand Microsurg. 4 (1): 21–4. doi:10.1007/s12593-012-0064-0. PMC 3371116. PMID 23730084.
  42. Azer SA (February 2014). "Evaluation of gastroenterology and hepatology articles on Wikipedia: are they suitable as learning resources for medical students?". Eur J Gastroenterol Hepatol. 26 (2): 155–63. doi:10.1097/MEG.0000000000000003. PMID 24276492. S2CID 7760287.
  43. Fahy E, Hardikar R, Fox A, Mackay S (2014). "Quality of patient health information on the Internet: reviewing a complex and evolving landscape". Australas Med J. 7 (1): 24–8. doi:10.4066/AMJ.2014.1900. PMC 3920473. PMID 24567763.
  44. Hasty RT, Garbalosa RC, Barbato VA, et al. (May 2014). "Wikipedia vs Peer-Reviewed Medical Literature for Information About the 10 Most Costly Medical Conditions". J Am Osteopath Assoc. 114 (5): 368–73. doi:10.7556/jaoa.2014.035. PMID 24778001. S2CID 40519767.

Most-viewed Wikipedia cancer articles

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Missing any? Please add - lymphoma is in top 6-7

Notes on articles

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Short, jargon-only

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Henry's picks

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Human papillomavirus - Intro wrong re types
Incredibly US focused (tho’ mentions the big European trial): Prostate cancer screening
Always a fun topic to fight over:

[Mobile_phone#Health_effects], Mobile_phone_radiation_and_health

There is *nothing* on the ‘alcoholic beverage’ page about health, let along cancer…

Alcoholic_beverage#Ethanol_considered_as_a_drug but (JB) Alcohol_and_cancer gets 60K vpa and is a terrible article

Only tangential mention of cancer on either of these pages:

Obesity, Body_fat - but (JB) Obesity-associated_morbidity gets 17K vpa & is a terrible title, really terrible article. Diet and cancer doesn't cover either.

But there is here: Overweight


http://wiki.riteme.site/wiki/Exercise Under ‘health effects’ – has a section on everything *except* cancer (and mentions obliquely just a couple of times).

Barely mentions cancer: http://wiki.riteme.site/wiki/Hormone_replacement_therapy

Could do with a check: http://wiki.riteme.site/wiki/Air_pollution#Cancer

Likewise: http://wiki.riteme.site/wiki/Carcinogen#Occupational_carcinogens

However, this is excellent: http://wiki.riteme.site/wiki/Superfoods

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blogs etc

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