Talk:Topical steroid withdrawal

Significant Updates and data sources for "Red Burning Skin"

More robust and more current sources for information are ITSAN and NEA . ITSAN, the International Topical Steroid Addiction Network, has a list of over a dozen scientific studies and articles on its website, as well as significant additional information to support patients and their families in their understanding, to help them navigate the healthcare system, and to help them obtain support from healthcare providers. NEA, the National Eczema Association, has created a Scientific Task Force specifically targeted to this issue and has published significant results. IMHO the terminology "red burning skin" is not as widely used or searched as the more common terms which are: red skin syndrome, topical steroid addiction, TSA, topical steroid withdrawal, and TSW.

MrBoz (talk) 17:34, 2 February 2017 (UTC)

References

Ref

This ref does not mention "red burning skin"[1]? Doc James (talk · contribs · email) 10:02, 25 February 2017 (UTC)

Steroids

In some places steroids are OTC and thus people can use them without a physician being involved. Better to keep things general. Doc James (talk · contribs · email) 12:00, 7 March 2019 (UTC)

Frequency

This does not make sense "In the study,11 the situations of patients with atopic dermatitis under treatment with TCS were compared, before and after 6 months of treatment. The proportion of poorly controlled disease was 19% in adults, 10% in children, and 7% in infants. The addicted patients had to be included in the poorly controlled group, and there were fewer children than adults and very few infants. Calculated as 19% − 7%=12% addicted adult patients, and 7% uncontrolled by other factors (ie, undertreatment). The numeral of 12% is smaller than 100% − 12%=88%, which is the proportion of estimated nonaddicted adult patients."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4207549/

Doc James (talk · contribs · email) 01:22, 26 June 2019 (UTC)

Long-term

This ref says "Topical corticosteroid withdrawal should be considered if: There has been a history of continuous prolonged use of mid- or high-potency topical corticosteroid (greater than 1 year)."

https://www.dermnetnz.org/topics/topical-corticosteroid-withdrawal/

Doc James (talk · contribs · email) 18:40, 13 September 2019 (UTC)

Children

This source says "Literature search yielded zero studies on/or reporting classic topical steroid withdrawal in children"

https://journals.lww.com/jdnaonline/fulltext/2017/09000/Systematic_Review_of_the_Topical_Steroid_Addiction.2.aspx

"The overall prevalence of red skin after topical steroid withdrawal is not known, nor is it yet understood whether the lack of reported paediatric cases is due to children not being affected or to under-reporting."

https://www.dermnetnz.org/topics/topical-corticosteroid-withdrawal/

The cases in children were in social media blogs.

Doc James (talk · contribs · email) 18:40, 13 September 2019 (UTC)

Denial, judgment, and Patient Profiling

As someone who had to care for a partner who went through the withdrawal and is better now.

I can assure you that while more peer-reviewed studies are available now, the amount of pushback you'd get from a dermatologist even after being corrected or informed was amazing. Because changing your mind on the topic would make a doctor liable from a legal standpoint, or at least that's the fear.

The utter dismissal and labeling of her was systemic and really bad and she got treated like a person who claims that the Wi-Fi is making them sick. I think the term is "Patient Profiling" and it's unprofessional and should be frowned upon. It's a bit like cops who don't know what to do when someone knows the law more than they do and they just assert themselves anyway.

https://bmjopen.bmj.com/content/12/3/e060867

References

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This article was the subject of a Wiki Education Foundation-supported course assignment, between 7 September 2022 and 1 January 2023. Further details are available on the course page. Student editor(s): Aharris13 (article contribs).

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