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British Heart Foundation
AbbreviationBHF
Formation1961
Legal statusRegistered charity
PurposeHeart and circulatory diseases and their risk factors
Location
Region served
United Kingdom
Patron
King Charles III[1]
Chairwoman
Karen A. Frank[2]
Chief Executive
Dr Charmaine Griffiths[3]
Chief Scientific and Medical Officer
Professor Bryan Williams OBE[4]
Websitewww.bhf.org.uk

The British Heart Foundation (BHF) is a cardiovascular research charity in the United Kingdom.[5] It funds medical research related to heart and circulatory diseases and their risk factors, and runs influencing work aimed at shaping public policy and raising awareness.[5]

In 2021, a study conducted by YouGov ranked the British Heart Foundation as the top charity or organisation in the UK by per cent of adults who hold a positive opinion of the organisation.[6]

Foundation

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The British Heart Foundation was founded in 1961 by a group of medical professionals who were concerned about the increasing death rate from cardiovascular disease. They wanted to fund extra research into the causes, diagnosis, treatment, and prevention of heart and circulatory diseases.[7]

BHF-funded clinical research

Leadership

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Dr Charmaine Griffiths has been the BHF's Chief Executive since February 2020, succeeding Simon Gillespie OBE. Professor Bryan Williams OBE became the charity's first Chief Scientific and Medical Officer (CSMO) in December 2023, after Professor Sir Nilesh Samani stood down as Medical Director after more than 7 years in the role.[8]

The BHF's Board of Trustees is made up of up to 14 Trustees, and is a mix of medically-qualified and lay members:[9]

  • Mark Ashton-Rigby
  • David Boynton
  • Dr Sarah Clarke
  • Roisin Donnelly
  • Professor Sadaf Farooqi
  • Mark Fitzpatrick
  • Karen A. Frank
  • Timothy Howe KC
  • Dr Annalisa Jenkins
  • Professor David Lomas
  • Sharron Pamplin
  • Professor Sir Munir Pirmohamed
  • Professor Brian Walker

Karen A. Frank is the Chair of the Board of Trustees.

King Charles III has been the BHF's Patron since May 2024, succeeding Prince Philip, Duke of Edinburgh.[10]

Activities

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British Heart Foundation shop, Loue, Cornwall
British Heart Foundation store, Hammersmith, London

The British Heart Foundation's main focus is to fund cardiovascular research, aiming to spend around £100 million a year funding scientists around the UK. They are currently funding over 1000 research projects.[11]

Centres of Research Excellence

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Since 2008 the BHF has been investing in Centres of Research Excellence. The six current centres bring together scientists from a number of disciplines to work on research projects to beat heart and circulatory disease.[12] The current Centres of Research are:

Centres of Regenerative Medicine

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In 2013 the BHF committed to funding three multi-institution Centres of Regenerative Medicine, investing £7.5 million over four years to fund scientists looking for new treatments for heart failure.[13]

BHF Clinical Research Collaborative

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The British Heart Foundation Clinical Research Collaborative was launched in 2019, hosted by the British Cardiovascular Society.[14] Designed to support the planning of high-quality national cardiovascular research, it brings together professional societies, research groups and patient and public involvement to better coordinate and prioritise research efforts.[14] It also launched a fund to support the development of clinical research in cardiovascular disease, providing grants from £5,000-20,000, and all topic ideas will be considered.[14]

Other patients and public activities include:

  • Information – BHF provides information to help the public reduce their own heart health risk. It also provides numerous resources for patients to better manage their conditions, including the Heart Matters magazine and online hubs on risk factors such as blood pressure and obesity.
  • Campaigning – BHF influences government to establish policies that minimise the risk of developing heart and circulatory disease, including the funding of reports and research
  • Support – offering advice to those with heart conditions via their website, information booklets or heart helpline.
  • Life saving skills – the BHF currently offers free CPR kits to schools[15] and is working with the Department of Health to distribute defibrillators throughout England.[16]

In 2020, The British Heart Foundation had a net income of just over £107m.[17] In the same year, the BHF spent over £93m on funding cardiovascular research.[18]

The Global Cardiovascular Research Funders Forum

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The charity announced, in June 2021, that it had joined forces with leading cardiovascular research funders around the world to form the Global Cardiovascular Research Funders Forum (GCRFF).[19] In addition to the British Heart Foundation, the Forum's members are:

The Big Beat Challenge

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In 2019, The British Heart Foundation launched the Big Beat Challenge, a global competition with a single award of £30m for the research team who proposed a transformational solution to any cardiovascular disease.[21] The Big Beat Challenge was open to applications from any country globally, and accepted proposals in any research area related to cardiovascular disease. Based on a panel of BHF research-funding committee members and an International Advisory panel, a shortlist was finalised in January 2020 to include a robotic heart, a 'Google map' of atherosclerosis, a project harnessing artificial intelligence (AI) and wearables to create a cardiovascular digital twin of a patient, and a genetic cure for inherited heart conditions.[22]

CureHeart, led by co-PIs Professor Hugh Christian Watkins and Professor Christine Seidman, which aims to find a cure for genetic cardiomyopathies, was announced as the winner of the Big Beat Challenge in July 2022.[23]

Fundraising

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BHF fundraising events accounted for nearly £54m of income in 2019-20.[24]

The BHF won the bid to be named as the London Marathon charity partner for the 2022 raise, aiming to raise £3m through the partnership to invest in clinical research.[25]

The annual London to Brighton Bike Ride is a flagship fundraising event, with over 16,000 cyclists and raising over £2.8m.[26] The event was cancelled two years in a row, in 2020 and 2021, and is expected to return in 2022 with PureGym as the sponsor.[26]

Retail Division

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The BHF runs the largest network of charity shops in the UK, and generates income through online sales too.[27] As of 2021, they run around 730 shops which include over 160 furniture and electrical shops selling up to 85,000 items daily.[28] The BHF Retail division makes roughly £30 million every year.[29]

Facts and figures

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  • Since the BHF was established, the annual number of deaths from heart and circulatory diseases in the UK has fallen by around half.[30]
  • Heart and circulatory diseases cause a quarter of all deaths in the UK, totally around 160,000 deaths.[30]
  • Around 1.4 million people alive in the UK today have survived a heart attack.[30]
  • Since 1961 the UK death rate from heart and circulatory diseases has declined by over three quarters.[30]
  • Healthcare costs relating to heart and circulatory diseases are estimated at £9 billion each year.[30]
  • Over 3,800 Heartstart UK schemes to educate people what to do in various emergency situations (not just cardiac emergencies). More than 3.5 million people have been trained by Heartstart UK in schools (for example via the Saving Londoners' Lives project) and the community.[31]
  • Every year 1 in every 145 babies are born in the UK with a congenital heart defect.

Criticism

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Animal research

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In June 2011, the British Heart Foundation was one of several health charities, alongside Cancer Research UK, the Alzheimer's Society and Parkinson's UK, targeted by animal rights pressure group Animal Aid, in a series of newspaper advertisements urging the public not to donate to the organizations under the pretence of funding experiments on animals.[32][33] The pressure group argued that 100 dogs had died since 1988 during the experiments.[34][35]

The BHF has responded to these criticisms by saying the charity only funds animal research after grant applications have gone through an independent peer review process and follows the three Rs principles when considering such grants.[36]

Wealth screening

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In 2016, the BHF was fined by the UK Information Commissioner's Office which ruled that the charity had breached data protection legislation by employing external bodies to analyse the financial status of supporters in order to appeal to them for further donations, a practice known as 'wealth screening'.[37] The BBC reported that, "Information Commissioner Elizabeth Denham said donors had not been informed of the charity's practices, and were therefore unable to consent or object to them. She also suggested other charities could also be engaged in similar activities.[37] The same BBC report noted that the charity's chief executive had stated that "the ICO's conclusions were 'wrong, disproportionate and inconsistent […] We find the decision surprising, as earlier this year in June the ICO praised our data handling. Our trustees will therefore consider whether it's in the interests of our supporters and beneficiaries to challenge this decision."[37]

See also

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References

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  1. ^ "His Majesty the King appointed as our Patron". British Heart Foundation. Retrieved 21 August 2024.
  2. ^ "Karen A. Frank announced as the BHF's new Chair of Trustees". British Heart Foundation. Retrieved 26 June 2024.
  3. ^ "BHF appoints Dr Charmaine Griffiths as new Chief Executive". www.bhf.org.uk. Retrieved 27 September 2023.
  4. ^ "Professor Bryan Williams joins BHF as Professor Sir Nilesh Samani steps down". www.bhf.org.uk. Retrieved 2 January 2024.
  5. ^ a b "British Heart Foundation: Charity Commission". Charity Commission. Retrieved 20 December 2021.
  6. ^ "The Most Popular Charities & Organisations (Q3 2021)". YouGov. Retrieved 25 November 2021.
  7. ^ "Who we are". British Heart Foundation. Retrieved 9 December 2016.
  8. ^ "Distinguished research leader, Professor Sir Nilesh Samani, to step down as our Medical Director". British Heart Foundation. Retrieved 8 September 2023.
  9. ^ "Meet our Board of Trustees". British Heart Foundation. Retrieved 6 March 2024.
  10. ^ "His Majesty the King appointed as our Patron". British Heart Foundation. 23 May 2024. Retrieved 23 May 2024.
  11. ^ "Where we fund". British Heart Foundation.
  12. ^ "Centres of Research Excellence". British Heart Foundation. Archived from the original on 20 December 2016. Retrieved 9 December 2016.
  13. ^ "Centres of Regenerative Medicine". British Heart Foundation. Retrieved 9 December 2016.
  14. ^ a b c "British Heart Foundation Clinical Research Collaborative". British Cardiovascular Society. Retrieved 9 December 2021.
  15. ^ "CPR kits for schools". British Heart Foundation. Retrieved 9 December 2016.
  16. ^ "DH and BHF make life saving defibrillator commitment". British Heart Foundation. 1 October 2016. Archived from the original on 20 December 2016. Retrieved 9 December 2016.
  17. ^ "British Heart Foundation Annual Report and Accounts 2020". British Heart Foundation. Retrieved 24 November 2021.
  18. ^ "British Heart Foundation income remained flat last year". Third Sector. Retrieved 24 November 2021.
  19. ^ "The BHF joins forces with international research funders to improve global heart health". British Heart Foundation. 22 June 2021. Retrieved 6 January 2023.
  20. ^ "Global Cardiovascular Research Funders Forum". British Heart Foundation. Retrieved 8 September 2023.
  21. ^ "The Big Beat Challenge: British Heart Foundation invests GBP 30 million to transform cardiovascular disease". Science.org. Retrieved 20 December 2021.
  22. ^ "British Heart Foundation reveals shortlist for £30m research prize". Medical Device Network. 23 January 2020. Retrieved 20 December 2021.
  23. ^ "£30m for scientists to rewrite DNA to cure killer heart diseases". British Heart Foundation. Retrieved 6 January 2023.
  24. ^ "Annual Reports and Accounts 2020". British Heart Foundation. Retrieved 10 November 2021.
  25. ^ "British Heart Foundation named as London Marathon charity partner for 2022 race". Civil Society. Retrieved 20 December 2021.
  26. ^ a b "BHF London to Brighton to return in 2022". UK Fundraising. 18 October 2021. Retrieved 20 December 2021.
  27. ^ "British Heart Foundation sees eBay sales increase by 12%". Retrieved 12 December 2021.
  28. ^ "British Heart Foundation shops achieve a record £1 million in sales as high streets reopen". UK Fundraising. 14 April 2021. Retrieved 12 December 2021.
  29. ^ "Our Annual Review and Accounts 2016". British Heart Foundation. Retrieved 12 December 2016.
  30. ^ a b c d e "Heart Statistics". British Heart Foundation. Retrieved 20 December 2021.
  31. ^ "Heart health: Nation of lifesavers: Heartstart". British Heart Foundation. Retrieved 11 January 2015.
  32. ^ Oliver Wright (21 June 2011). "Animal rights group declares war on leading health charities". The Independent. Retrieved 24 November 2011.
  33. ^ "Charities are attacked over experiments experiments". The Scotsman. 20 June 2011. Retrieved 24 November 2011.
  34. ^ "Leeds University animal rights protest staged". BBC News. 16 November 2011. Retrieved 24 November 2011.
  35. ^ Ted Jeory (2 September 2013). "EXCLUSIVE: Outrage as major UK charity uses donations to fund vivisection tests on dogs". Sunday Express.
  36. ^ "Improving heart failure treatment through research | BHF".
  37. ^ a b c "Charities fined over 'wealth screening' data breaches". BBC News Online. BBC. 6 December 2016. Retrieved 6 December 2016.
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